Hospice care focuses on comfort and support for individuals with a terminal illness and their loved ones. It prioritizes managing pain and symptoms, improving quality of life and providing emotional and spiritual support during this sensitive time.
Who can call the hospice agency for an update on the patient?
This depends on your relationship to the patient and their wishes. Here is a quick breakdown:
- The patient themself: They always have the right to request information about their care.
- The patient’s designated healthcare representative: This is someone appointed by the patient to make medical decision on their behalf if they are unable to do so. Their name should be documented in the patient’s medical records.
- Family members and close friends: With the patient’s consent, the hospice team can share information with designated loved ones. However, the patient’s privacy is paramount, and the hospice will only share what the patient allows.
- Healthcare professionals involved in the patient’s care: Doctors, nurses, and other healthcare providers involved in the patient’s care can consult with the hospice team for updates, as appropriate for their role.
It’s important to remember:
- Confidentiality: The hospice team respects the patient’s privacy and will only share information with authorized individuals.
- Open communication: Don’t hesitate to ask the hospice team questions you may have. They are there to support you and provide information throughout the process.
Additional Resources:
- National Hospice and Palliative Care Organization: https://www.nhpco.org/
- Medicare Hospice Benefit: https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice
- Family Caregiver Alliance: https://www.caregiver.org/
